Preparing for lengthy hospital stay....what do I buy/bring/need?

Cortez will PM you his pornhub login and favorites list.

Seriously, though, get better man. You're a crazy mofo and all around good guy.

 

Good list here.
Add:
- Your own twin bed pad for the plastic mattress, so your backside doesn't sweat so much. I double them, using two layers. Mark with your name.
- Your own sheets, if you have someone to wash them for you. Name also.
- Your own pillow, if you are picky about that stuff. Name also.
- lightweight extension cord, with multiple plugs at end, as someone else has mentioned.
- Bluetooth speaker.
- Chargers for everything.
- Install White noise App. on phone and /or tablet. Sleeping at night with all of the noise & people coming in and out through the night makes sleeping tough. I usually slept the best after morning Dr. rounds and breakfast. Ask nurses and aids to help you manage the blinds, etc.
- Razor and your own scissors.
- Pen, pencil and note pad. Sharpee for labeling things.
- Write down names of nurses, aids, cleaners, and other professionals. Make notes about them, so you can remember stuff. Ask nurses for comment cards to praise great & good ones. Complain about the bad ones; they shouldn't be there.
- Ask about food service options, early on. Plan your menu choices well ahead. Most hospitals offer many choices for meals, if you plan ahead.
- Do all of the exercises you possibly can, while in there! Walk whenever you can, as far as you can, as often as you can. I counted and documented my steps. As a nurse taught me: "Mobility leads to motility!" You will recover more quickly, also.

I wish you the best of luck! Been through it several times.

 

TY <3

 

I would suggest a copy of the book. Touching the Void, great read and will assure you anything is possible. It’s also a movie but the book I think is better.

 

Met w/ surgeon and reconstruction surgeon this morning.....just keeps getting worse. I enter house of horrors monday @ 5am.
Split & remove my upper lower jaws. Remove my tongue, and make new tongue out of thumb-muscle and forearm muscle.
Using my thigh muscle for reconstruction throat and misc other.
Trache and stomach tube.
Therapy to try relearn how to talk w/ new tongue, and how to eat/swallow.
Then radiate/kill my tumored thyroid, neck muscles/etc, and saliva glands....told me I will never make saliva again, told me I will never recover from surgery & radiation.
Then chemo...fun fun fun.
Then hope after all that, I actually beat the C. The C, they cant figure out where it is coming from, the C that is not supposed to be in my neck/organs/lymphs.
Imma look/sound like Dr Frankenstiens' Monster.... :/

Chronic (Crippling) Complex-PTSD + this =
I am in a state of disbelief (after all I have been through already) and depression. and the clock is ticking.

 

Sorry to read this. I can't imagine having all that dropped on me. I know shit looks bleak right now but I hope you say "fuck this motherfucker, I'm going to kick its ass and heal up"
Positive fighting attitude goes a long way. Let us know what we can do to provide support.

Sent from my moto x4 using Tapatalk

 

Damn dude.

Is it too late to look at alternate treatments and other docs? Seems like an incredibly specialized process. My friend who had his jaw reconstructed with his fibula lives in SC and went to Portland OR for the procedure after researching docs.

In any case I hope it goes well.

Make sure someone on here can get into contact with your contacts to keep us posted and get anything you need to you.

 

Thank you guys <3
I am running out of steam.......

 

I'm guessing you have an oncologist at this point?

 

So many drs involved at this point, two hospitals as well.
I have visuals of my dad go though this, to a lesser extent(his caught was sooner) (Covid delayed having them look at me many months)....he went from athlete, to old man over night.
Visuals of my brother not making it much past the chemo.

Imma look/sound like a Monster, haha

 

Get well soon, Speedy ! Enjoy the time off, there is not much else to do anyways. Maybe read about quantum physics and discover parallel universes ?

 

God put me here to play w puppies, smell their puppy breath, bottle-feed raccoon orphans, work & GET PAID, fall in love w asians and ride moto-bikes.
It all went so wrong, LOL

 

That sucks man for sure and I'm sorry to hear it. Keep your head up and remember those animals you love don't care about how you or anyone looks

 

You are in my prayers Speedy.

 

You need to have someone who can advocate for you. Reply to my text, LMK.

 

This. Praying for you Speedy.

 

Your level of stubbornness is being tested. You have to be more stubborn than the cancer is. Meaning, if the cancer has 2 years of fight in it, then you need to have two years, and one day, of fight in you. You just have to be more stubborn than the cancer. It will eventually say, “fuck it, I give up, I’m gonna go mess with someone else”. Keeping you in my prayers. Pm me if I can help in any way.

 

As I read your post I realized there was a girl in my past that had gone through something similar. The no saliva reminded me. She did just fine, well until I took her rock climbing. The only thing was she always had to have s water bottle. You have this, just keep kicking it’s butt.

 

@SpeedyE you got this man. Prayers for you. This can't be easy. You're already tougher than most! Keep the good fight up

 

If one of the guys in his area can make arrangements for an Asian stripper to visit him when he's well enough to enjoy the show after the surgery, I got the first 100 bucks. Not kidding.